Lifestyle & Trends - Community

Rare Disease Impact Report quantifies patient and caregiver challenges on journey to diagnosis and beyond

Getting a diagnosis is just the first of many challenges patients with rare diseases - and their caregivers - face.

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How to support your friend in a split

When a marriage ends in divorce, it's not just the couple who is involved. Friends and family members are also part of the process and often play many different parts. Support can make a critical difference to your friend, but unfortunately, doesn't come with how-to manual.

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Technology can turn $25 into a family giving tradition

Technology has been connecting families for generations. The invention of the phone let us hear voices of loved ones far away, and the creation of the Internet helped us to see them. Today, those same technologies that we've used to bring our families closer together are helping us to connect with and support families who are worlds apart. In doing so, the very concept and experience of "gifting" and philanthropy is being transformed.

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The career paths that lead to everyday acts of heroism

Often, we don't think about heroism until we see it in action - when disaster strikes and ordinary people exhibit extraordinary courage and compassion to help victims in their time of need. The truth is, however, that the best of human nature is on display every day in the lives of millions of Americans who work in public service jobs across the country. Sometimes all it takes to tap that inner hero is an opportunity - and the education - to serve others.

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Rare diseases: Increasing awareness for better patient outcomes

Getting a diagnosis of any cancer can be frightening, but for those diagnosed with a rare cancer, the emotional toll can be much worse. For some of these patients, the journey to a correct diagnosis may take years, and once they receive an accurate diagnosis, it can be extremely difficult for these patients to find accurate information on their disease. One of the first things patients do is research everything they can about their illness, including connecting with someone who is also living with the disease, and learning their options for disease management and treatment.

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