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FERRIER FILES: Desperate attempt to find cure for Tennessee boy, 500 others continues

(FOX 17 News)

A desperate fundraising attempt to save the life of a Williamson County boy and 500 other boys in the United States has reached the $900,000 mark.

The disease is called Hunter’s Syndrome and it is so rare no pharmaceutical company is willing to foot the bill for a drug trial.

This rare disease is always fatal but a cure is at hand. The drug trial costs a total of $2.5 million dollars, the cost of producing the vector is $1.4 million dollars.

It is a truly a race for the Hogan family, who still needs to raise $500,000 more for a vector.

Anyone wishing to help out the family can donate on Project Alive's website.


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