FERRIER FILES: Desperate attempt to find cure for Tennessee boy, 500 others continues
NASHVILLE, Tenn. (WZTV) —
A desperate fundraising attempt to save the life of a Williamson County boy and 500 other boys in the United States has reached the $900,000 mark.
The disease is called Hunter’s Syndrome and it is so rare no pharmaceutical company is willing to foot the bill for a drug trial.
This rare disease is always fatal but a cure is at hand. The drug trial costs a total of $2.5 million dollars, the cost of producing the vector is $1.4 million dollars.
It is a truly a race for the Hogan family, who still needs to raise $500,000 more for a vector.
Anyone wishing to help out the family can donate on Project Alive's website.